http://www.showusthecure.com/intro2declaration.htm

To read the Declaration of Research Rights and Responsibilities in its entirety, visit:
http://www.showusthecure.com/DeclarationofRightsfinalMay27_2008.pdf

Only YOU can “show us the cure”

If you are one of the 99% of people with Parkinson’s (PWP) who have NOT participated in a clinical trial, ask yourself, in the words of the ancient scholar Hilell, “If not you, then who? If not now, then when?”

Difficulty recruiting and retaining enough participants to test the safety and effectiveness of new treatments is a major obstacle to finding a cure for Parkinson’s. Our nation’s top scientists are sitting in state-of-the-art labs with a myriad of promising research ideas and the funding to test them, but too few PWP to get clinical trials underway. The repercussions of this crisis will negatively impact our children and grandchildren long after we’re gone.

Moving new treatments through the drug pipeline -- from the laboratory to the marketplace -- takes about 8-1/2 years, time we do not have to waste. Increasing clinical trial participation by only two or three percent could significantly reduce the time required for completion of a study, potentially making more effective treatments or even a cure available sooner.

If you are waiting for someone to knock on your door and hand you the cure, I assure you that it won’t happen. We will get a cure only when each of us steps up to the plate and participates in clinical trials.

Jean Burns, my co-founder of pdplan4life.com, and I have participated in a combined eight clinical trials, so we’re not asking you to do anything we haven’t done. Regardless of the unknowns that may be holding you back from participating in a clinical trial, the certainty of end stage Parkinson’s is scarier.

To help build trust among all stakeholders in the drug development process, increase participation in clinical trials, bring new therapies to market sooner, and hasten discovery of a cure, patient advocates, including myself and Jean, have written the Declaration of Clinical Research Rights and Responsibilities for People with Parkinson's (PWP). Please read the document and add your name to the growing list of supporters.

We need you to do your part and enroll in a clinical trial. Like it or not we, and each of our families, are in this together. We sink or swim as one.


 

**Legal Disclaimer: The contents of this website are solely for information purposes.  While we make every effort to assure that the information is accurate and up to date, an error may occasionally occur.  All information and materials are provided AS IS without any warranty of any kind.  In no event will this website or its owner be held liable for any damages arising out of information contained in our website.